Motor Neuron Disease: A Practical Manual
OUP Oxford, 2010 - Medical - 214 pages
There are around 5000 patients in the UK living with Motor Neuron Disease (amyotrophic lateral sclerosis), and many others shouldering the burden of their care. This fatal neurodegenerative disease leads to progressive muscle weakness and wasting, and there is currently no effective treatment. Managing these patients from their initial presentation, through confirmation of diagnosis and throughout their disease journey is challenging for all healthcare professionals. It requires a multi-disciplinary approach involving neurologists, general practitioners, palliative care physicians, specialist nurses, physiotherapists, occupational therapists and speech and language therapists. Each member of the team has different priorities to effectively manage the myriad of symptoms and other practical difficulties, both emotional and financial, that the MND patient may experience. This book is a comprehensive guide to the complexities of care for the patient with Motor Neurone Disease, written by experienced members of a large care centre. It has been specifically written and designed to provide comprehensive, easily accessible advice for all healthcare professionals involved in the care of patients with this challenging condition, including diagnostic, prognostic, physical, emotional, and practical challenges. The entire care pathway from presentation to diagnosis to symptom management and end of life issues is addressed in detail, but in a highly structured, easily accessible format, that allows the reader to find practical answers rapidly. This book is an invaluable resource for neurologists (including those in training), neurology wards and specialist nurses, physiotherapists, occupational therapists, speech and language therapists, respiratory and gastroenterology departments providing NIV or PEG support, palliative care teams and all healthcare professionals with an interest in MND patients.
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understanding motor neuron disease
is it motor neuron disease?
3 Natural history of motor neuron disease
4 Organization of MND services
5 Measurement of change
6 Genetics of MND
7 Potential diseasemodifying therapies
8 Symptom management
9 Management of respiratory symptoms
Other editions - View all
adaptations ADRT advice amyotrophic lateral sclerosis assessment associated Autosomal biomarker breathing carers cause Chapter clinical trials cognitive common corticospinal tract death disability disease progression disorders drug dysphagia early effect environmental evidence factors fALS fasciculations function gene genetic hospital impairment individual intentionally left blank limb loss lower motor neuron Manual measures mimic MND clinics MND patients mobility motor neuron disease motor neuropathy motor unit muscle muscular atrophy mutations neurodegenerative neurologists neurophysiology normal nutrition ofdisease ofthe palliative pathological patients with MND phenotypes potential Primary lateral sclerosis Progressive bulbar palsy protein rare require respiratory involvement Riluzole risk sensory significant sleep slowly progressive SOD1 spastic paraparesis spinal cord spinal muscular atrophy sporadic stem cells studies survival symptom onset syndrome terminal phase therapy tracheostomy treatment typical ubiquitinated UMN signs upper motor neuron usually ventilation wheelchair