Ethical Dilemmas in Genetics and Genetic Counseling: Principles Through Case Scenarios

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Janice L. Berliner
Oxford University Press, Sep 25, 2014 - Medical - 226 pages
Knowledge of the genetic basis of human diseases is growing rapidly, with important implications for pre-conceptional, prenatal, and predictive testing. While new genetic testing offers better insight into the causes of and susceptibility for heritable diseases, not all inherited diseases that can be predicted on the basis of genetic information can be treated or cured. Should we test everyone who wants to know his or her genetic status, even when there are no possibilities for treatment? What is the role of the "right-not-to-know?" Do we test children for adult onset disorders because the parents just "have to know" or do we respect the children's right to choose when they are older? Do we allow commercial companies to offer genetic tests directly to consumers without the proper oversight regarding what the test results will mean?

By using a creative approach that focuses on a single extended family as a case example to illustrate each chapter's key point, the authors elucidate ethical issues arising in the genetics clinic and laboratory surrounding many timely issues, including:

prenatal and pre-implantation genetic diagnosis
assisted reproductive technologies
incidental findings in genetic testing
gene patenting
testing children for adult onset disorders
direct to consumer testing

Ethical Dilemmas in Genetic Counseling: Principles through Case Scenarios is essential reading for anyone interested in the ethical issues surfacing in common genetics practice. Written exclusively by genetic counselors, it makes a significant contribution to the field of ethics in genetics and thus will appeal not only to genetic counselors but to physicians, nurses, and all those concerned with bioethics and social science.
 

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Contents

1 Introduction to Clinical Ethics
1
2 The micro Array of Options for Prenatal Testing
20
3 The ART of Assisted Reproductive Technologies
61
4 Testing Children for AdultOnset Disorders
96
IncidentalFindings Identified as a Result of Genetic Testing
117
6 Is That a Threat or a Promise? DirecttoConsumer Marketingof Genetic Testing
135
7 Genetics and Patent Law
159
8 Ethical Issues in Genetic and Genomic Research
186
Index
209
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About the author (2014)


Janice Berliner, MS, CGC, is a Board-Certified Genetic Counselor and Senior Genetic Counselor at Memorial Sloan-Kettering Cancer Center. She has served on numerous committees as well as the Board of Directors of the National Society of Genetic Counselors and the American Board of Genetic Counseling.

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