In the Kingdom of the Sick: A Social History of Chronic Illness in America

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Bloomsbury Publishing USA, Apr 9, 2013 - Medical - 243 pages
4 Reviews
Thirty years ago, Susan Sontag wrote, "Everyone who is born holds dual citizenship in the kingdom of the well and the kingdom of the sick ... Sooner or later each of us is obliged, at least for a spell, to identify ourselves as citizens of that other place." Now more than 133 million Americans live with chronic illness, accounting for nearly three-quarters of all health care dollars, and untold pain and disability.

There has been an alarming rise in illnesses that defy diagnosis through clinical tests or have no known cure. Millions of people, especially women, with illnesses such as irritable bowel syndrome, chronic pain, and chronic fatigue syndrome face skepticism from physicians and the public alike. And people with diseases as varied as cardiovascular disease, HIV, certain cancers, and type 2 diabetes have been accused of causing their preventable illnesses through their lifestyle choices.

We must balance our faith in medical technology with awareness of the limits of science, and confront our throwback beliefs that people who are sick have weaker character than those who are well. Through research and patient narratives, health writer Laurie Edwards explores patient rights, the role of social media in medical advocacy, the origins of our attitudes about chronic illness, and much more. What The Noonday Demon did for people suffering from depression, In the Kingdom of the Sick does for those who are chronically ill.
 

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LibraryThing Review

User Review  - NTE - LibraryThing

Let me first say, that it’s complicated for me to talk about this book, particularly in any sort of unbiased way, since I’m in it. Quite a bit, actually: Over the course of the last four years, Laurie ... Read full review

LibraryThing Review

User Review  - billsearth - LibraryThing

The author does a very good job guiding the reader through the social history of illness. The author references many books, studies, and experts, up to forty per chapter so the content is pretty ... Read full review

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Contents

Introduction
1
From Plato to Polio
9
H A P T E R 2
29
CHAPTER 3
49
CHAPTER 4
69
H A P T E R 5
87
H A P T E R 6
109
Patients in the Digital Age
129
Participatory Medicine and Transparency
159
What Future at What Cost?
183
Acknowledgments
211
Bibliography
225
Copyright

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About the author (2013)

Laurie Edwards has an M.F.A. and teaches health and science writing at Northeastern University. She has had several chronic illnesses since childhood. Her blog www.achronicdose.com receives several thousand monthly visitors and is linked to more than 180 medical blogs. Edwards is author of Life Disrupted: Getting Real About Chronic Illness in Your Twenties and Thirties, named one of 2008s Best Consumer Health Books by Library Journal. She lives outside Boston, Massachusetts.

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